Community Bulletin: Therapeutic Concerns, Professional Education, Newspaper Announcement | Spectrum
Illustration by Laurene Boglio
This week, Twitter was, well, atwitter, in response to a point of view in JAMA Pediatrics which challenges autism researchers to reconsider behavioral interventions from a neurodiversity perspective. The article states that “increasingly, parents are expressing reservations about enrolling their child in early intervention programs, citing concerns that such programs do not value neurodiversity and, instead of this, prioritize changing their child’s behavior to fit neurotypical norms”.
Among a slew of tweets sharing and quoting the article, Yasser Ad-Dab’baghneuroscience and mental health researcher at King Fahad Specialty Hospital in Saudi Arabia, called this view “important perspective that is a #MustRead.” Co-author of Viewpoint Laurent Franzassistant professor of psychiatry and global health at Duke University in Durham, North Carolina, tweeted that the article was a “wonderful collaborative effort.”
Important point of view which is a #Must read
—
Reconsidering the goals of early behavioral intervention in autism from a neurodiversity perspective https://t.co/xwVArE3tdE Going through @JAMAPediatrics part of @JAMAnetwork— Yasser Ad-Dab’bagh (@yasseraddabbagh) July 12, 2022
Wonderful collaborative effort :-). @GeriDawson @DukeAutismCtr
Reconsidering the goals of early behavioral intervention in autism from a neurodiversity perspective https://t.co/kG6qpIDE28 Going through @JAMAPediatrics—Dr. Lauren Franz ???????????????? (@laurenfranz78) July 11, 2022
Tony Charmanprofessor of clinical child psychology at King’s College London in the UK, tweeted that “there are very different points of view on these issues but some some [sic] paths (and goals) can be shared…? »
There are very different points of view on these questions, but some of the paths (and objectives) can be shared…? @GeriDawson @laurenfranz78 Reconsidering the goals of early behavioral intervention in autism from a neurodiversity perspective https://t.co/9s6p1gPZ6Q Going through @JAMAPediatrics
— Tony Charman (@TonyASDorAFC) July 14, 2022
In a separate tweet, the Autism Science Foundation noted that early intensive behavioral intervention”improves outcomes for people from all walks of lifeand is not in conflict with #neurodiversity.
A new perspective on @JAMAPediatrics points out that #EIBI improves outcomes for people across the spectrum, and does not conflict with #neurodiversity.
Read it here: https://t.co/PeYNQ3qo5R
— ASF (@AutismScienceFd) July 12, 2022
In other Twitter news, autism in adulthood announced that it had been accepted by PubMed Central, an online repository of biomedical journals, noting that “ALL articles will be OPEN ACCESS for 12 months after publication. A great way to make our content accessible! »
So HAPPY to announce that @AutismAdulthood has been accepted to PubMed Central https://t.co/zLDSGXzSMx
ALL articles will be OPEN ACCESS for 12 months after publication. A great way to make our content accessible!
Know more about us : https://t.co/LotdaNUrax pic.twitter.com/lMKwtgATGd
— Autism in adulthood (@AutismeAdulthood) July 12, 2022
The announcement prompted a source of excitement and congratulations, such as Jo Billington, a PhD student at the Center for Autism at the University of Reading in the UK, who tweeted: “This is an excellent review and I’m really happy that their articles are now getting a wider audience. Make known!”
This is a great journal and I’m really happy that their articles are now getting a wider audience. Make known! https://t.co/C8TTqLcuLA
— Jo Billington (@MsJoBillington) July 12, 2022
From the files in case you missed it, the University of Michigan tweeted about a virtual reality training program to help people with autism enter the job market, which has been the subject of a recent Chicago Grandstand article. (Spectrum also highlighted the study evaluate this training program).
A virtual reality job interview training program created by researchers from @UMSocialWork, @UMichLSAand @UMichMedicine appeared in a @ChicagoTribune article that explains how to help people with autism enter the job market. https://t.co/OIcOMJni31 #VR pic.twitter.com/X0TqDU69gN
— University of Michigan (@UMich) July 12, 2022
Matthew J. Smithassociate professor of social work at the University of Michigan in Ann Arbor and study investigator, was grateful of the Chicago Grandstand to highlight the value of the program.
Appreciate Dr. Lisa Yeh @AARTSCenter @chicagotribune @UMich to highlight the value of @SIMmersion_PR #virtual reality job interview training to help #Autism #AutismAcceptance #autistic #ActuallyAutistic communities gain jobs!! https://t.co/pvXXdTJcC2 https://t.co/YweVdcO6Sj
— Dr. Matthew J. Smith (@Dr_JobGetter) July 12, 2022
For a fitting conclusion to this week’s Community Bulletin, we turn to a study in autism research which looked at student recruitment through social media. He found that “sampling from online channels may be associated with a high risk of sampling bias, making the results not generalizable to the autistic population.”
“Social media is a bubble. This may be a big bubble for some, but it’s still a bubble,” tweeted Paul Whiteleydirector of ESPA Research in the UK
Representativeness of autistic samples in studies recruiting via social media https://t.co/Vmfch9yZkx Unsurprisingly, “the findings may therefore not be generalizable to autism in general.” Social networks are a bubble. It may be a big bubble for some, but it’s a bubble nonetheless.
— Paul Whiteley (@PaulWhiteleyPhD) July 11, 2022
With reference to the same article, michelle dawsonautism researcher at the Rivière-des-Prairies Hospital in Montreal, Canada, wondered: autism samples are representative? »
Samples of autistic people recruited for online surveys via social networks are not representative of “the autistic population as a whole”? https://t.co/tHJ0sl6xQZ note: but which autistic samples are representative? free
— Michelle Dawson (@autismcrisis) July 9, 2022
Becky Woodlecturer in special education at the University of East London, tweeted his agreement with Dawson but also wrote: ‘I think the article makes a valid point.In a separate tweet, she wondered why the research did no mention of COVID-19“given that almost all of the articles are from 2019 or later.”
It seems strange not to have mentioned Covid given that almost all the articles are from 2019 or later.
— Dr. Becky Wood (@thewoodbug) July 9, 2022
What do you think? Is recruiting for autism research through social media a good idea?
That’s it for this week’s Community Newsletter! If you have any suggestions for interesting social posts you’ve seen in autism research, please feel free to email [email protected].
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Cite this article: https://doi.org/10.53053/XIKY8934
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